ASD = Autism Spectrum Disorder
CDI = Continuous Diphenhydramine Infusion (24/7 IV Benadryl pump)
CFIDS = Chronic fatigue immune deficiency syndrome
CNS = Central nervous system
C-PTSD = Complex Post Traumatic Stress Disorder
CVID = Common Variable Immuno Deficiency
Dysautonomia = dysfunction of the autonomic nervous system
EDS= Ehlers Danlos Syndrome, a group of connective tissue disorders
EC = Eosinophilic Colitis
EGID = Eosinophilic Gastrointestinal Disease
EoE = Eosinophilic esophagitis
GAPS = Gut and Psychology Syndrome (healing diet similar to SCD)
GF = Gluten-free
GF/CF = Gluten-free, casein-free (casein is a dairy protein)
HPA = Hypothalamic/Pituitary/Adrenal Axis
IM = Intramuscular
IV = Intravenous
MCAD = Mast Cell Activation Disease, an umbrella term for the various mast cell disorders
MCAS = Mast Cell Activation Syndrome, one of the forms of MCAD
MCS = Multiple Chemical Sensitivities
ME/CFS = Myalgic encephalomyelitis/ Chronic Fatigue Syndrome
MM or MMJ = Medical marijuana
OAS = Oral Allergy Syndrome
PANDAS = Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep
PANS = Pediatric Autoimmune Neuropsychiatric Syndrome
PICC = Peripherally Inserted Central Catheter (one form of central line)
PDD-NOS = Pervasive Developmental Disorder- Not Otherwise Specified
POTS = Postural Orthostatic Tachycardia Syndrome, a form of Dysautonomia
PTSD = Post Traumatic Stress Disorder
SCD = Specific Carbohydrate Diet
SM = Systemic Mastocytosis, another (and more rare) form of MCAD
SPD = Sensory Processing Disorder
TPN = Total Parenteral Nutrition (IV nutrition)
VAERS = Vaccine Adverse Event Reporting System
VICP = Vaccine Injury Compensation Program
This is the story of how my son has recovered from an autism spectrum disorder and how I am managing and working to recover from a neuro-immune disease called Myalgic Encephalomyelitis. I discuss the ups and downs of our lives as well as much of the information that led to my son's recovery and my own progress- autism and M.E. are both manifestations of the same underlying disease processes.
This blog is a way of sharing the information and resources that have helped me to recover my son Roo from an Autism Spectrum Disorder. What I have learned is to view our symptoms as the results of underlying biological cause, which can be identified and healed. I say "our symptoms" because I also have a neuro-immune disorder called Myalgic Encephalomyelitis.
And, of course, I am not a doctor (although I have been known to impersonate one while doing imaginative play with my son)- this is just our story and information that has been helpful or interesting to us. I hope it is helpful and interesting to you!
And, of course, I am not a doctor (although I have been known to impersonate one while doing imaginative play with my son)- this is just our story and information that has been helpful or interesting to us. I hope it is helpful and interesting to you!
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