The extreme irony of the fact that I have a child on the spectrum (formerly on the spectrum?) is that I worked with children with autism before having my own kids. That was during the 90s, and back then I often had to explain that no, I don't work with "ARTistic children", I work with "AUTistic children", followed by a brief description of the rare disorder that few people had direct experience with let alone even heard of. Back then, very few people said "oh, my sister's kid has that" or "my neighbor's kid is autistic too" or "last year there were two autistic kids in my kid's class". Times sure have changed. Now it seems that nearly everyone I know or meet has someone with autism in their immediate circle of family and friends.
My experience working with kids with autism has actually not been of much use in helping Roo, as I was an ABA program director, and have never felt that ABA was appropriate for him. I still think it is an excellent option in many cases, just not for my son. That is another post. However, the real gift that my former career brought to us is that I knew recovery was possible. I knew that most kids with autism would see significant improvement in their quality of life from appropriate and timely intervention, and that some would achieve a level of functioning that would make them indistinguishable from their non-autistic peers in every way. What I didn't know when I started this journey with Roo was the means by which he would experience such remarkable progress.
Please see the post Studies that Validate the Possibility of Recovery From Autism for more information.
Below is a list of first-hand accounts of recovery from Autism:
Is Recovery From Autism Possible? This is a recording of a presentation that was given at the 2018 AutismOne conference by Marcia Hinds, the mother of a recovered child named Ryan. She tells her family's story of autism from getting the diagnosis, through the many steps and twists and turns that the treatment process turned out to be, up to his recovery and present life as an aerospace engineer.
Kaylee's Recovery Story
This is a local news piece about the recovery of Lori Knowles' son Daniel-
This is an interview of a mom, Leann Whiffen, whose son recovered. She talks about autism being a multi-system disorder that affects the GI tract, the neurological system, and the immune system. They did both ABA and biomedical with the help of Dr Jepson, a leading DAN! doctor. She talks about the dilemma of wanting to try whatever her son might need to help him, but at the same time being cautious and carefully researching the options.
This is a video of Leann's son Clay that shows just how far he has come:
This next video documents the recovery of Stan Kurtz' son Ethan. For some reason Ethan's recovery story really captivated me, even though he was so different than Roo, which seemed to foreshadow Roo's major leap forward when given the same anti-viral drug, Valtrex. Stan Kurtz is now the director of Generation Rescue and one of my personal heroes.
Baxter's recovery from autism:
This is a short documentary that gives more details about Baxter's story:
This is a short film called "Finding the Words" about recovery from autism. At one point, Dr Martha Herbert, a pediatric neurologist at Harvard Medical School says of the paradigm shift from "autism is a genetic brain disorder" to "autism is a whole body, medical disorder" that it is going from "seeing what you believe to believing what you see". This is actually the short version of a longer film.
Joe Mohs, who recovered from autism with ABA therapy, shares his story and experiences through the site joe'slivingproof.com . Here is Joe talking about his story...
Stan Kurtz, the father of a recovered child, set up this site to share stories of recovery from autism.
Our Journey with Autism is from a family's sweet blog.
Amanda's Journey
Daniel's Recovery From Autism (this is a webinar that will happen in August of 2014)
Hidden Recovery (a blog by a the mom of a recovered child)
Raun Kaufman
is the CEO of the Autism Treatment Center of America (providers of the
Son-Rise Program), and is himself recovered from autism. I had the
opportunity to hear him speak several years back, and it was amazing. I
had heard many people dismiss his story of recovery, saying that he was
clearly still autistic. I saw nothing like that at all. Hearing him
speak was deeply inspiring to me.
Autism in not Forever: Bill and Jo Krueger and their daughter Chanel.
Stories of recovery from the Dana's View site
Meet Simon- Fully Recovered From Autism is an interview with a man who has recovered, talking about the experience.
My Bad Ass Autism Survivor Story
by Julia Berle, who is the mother of a recovered child, provides some
insight into the gray areas around recovery, including the idea that
recovery itself may also be a spectrum.
Autism Yesterday is a short documentary about several kids who have recovered from Autism.
Reversing Autism is a short film introducing the biomed approach but includes discussion of recovery and recovered kids.
There is a TED talk that was given by a father and his daughter about how poetry helped her recovery from autism, but I can no longer find the link.
