So on that note I am presenting below videos that have been posted by people with a wide variety of conditions that tell us and show us what daily life is like for them, what challenges they face, what treatment might be life, or any other details of living with that condition. These people are allowing us to see a vulnerable side of their lives that can be very hard to share so I am deeply grateful for people willing to do this. Being able to "meet" other people who share my issues and struggles has helped me so much in figuring out "where I am" in life and have given me ideas about where I might go.
General and Miscellaneous:
Adjusting to life after a long hospital stay and being on TPN
Lessons learned after one year of a feeding tube
Why Am I so Skinny? (Woman with Gastroparesis talks about invisible illness and people being rude)
Things I didn't think about until I was in a wheelchair!
Extreme Chemical Sensitivity Makes Sufferers Allergic to Life
My Bronchiectasis Journey with Raihana's Cuisines
'In six days I'll lose my voice forever' - BBC News
An account of what hospital treatment (or lack thereof) is often like for people with rare and/or complex medical conditions.
Using and Wearing a Catheter for Urine Collection
Living with POTS (Postural Orthostatic Tachycardia Syndrome) and Tilt Table Test
Cystic Fibrosis: Living With a Terminal Illness
This is Stephen Hawking's Last Inspiring Message to Humanity
Living with PTSD
Coping with intense chronic pain and the limitations of chronic illness
What it feels like to die (from Claire Wineland who has Cystic Fibrosis)
Mast Cell Diseases:
STRUCK BY MAST CELL ACTIVATION SYNDROME, JENNIFER CREDITS M HEALTH EXPERT WITH SAVING HER LIFE
Utah Teen Discovers He's Allergic to Food: 'I Remember What it Tastes Like, That Will Have to Be Enough'
My mast cell activation syndrome rare disease day video !
South Portland woman with rare immune system disease struggling physically, financially
Mast Cell Disease: A Living Nightmare
Woman who's allergic to almost everything speaks out
Hoover boy's rare disease leaves him allergic to almost everything he eats
TPN for Short Bowel Syndrome
Tips and Tricks for Dressing with an Ostomy
Living with Gastroparesis
My Gastroparesis Story
Gastroparesis: The stuff no one really talks about
Crohn's Disease; Things I Wish People Knew
Ehlers-Danlos Syndrome (EDS) and other Connective Tissue Disorders:
My experience of Marfan Syndrome
What C-PTSD really looks like - the invisible disability
Living with Medical PTSD
Living With PTSD at Seventeen (Medical PTSD)
What Does a PTSD Flashback Feel Like? (Medical trauma)