This blog is a way of sharing the information and resources that have helped me to recover my son Roo from an Autism Spectrum Disorder. What I have learned is to view our symptoms as the results of underlying biological cause, which can be identified and healed. I say "our symptoms" because I also have a neuro-immune disorder called Myalgic Encephalomyelitis.

And, of course, I am not a doctor (although I have been known to impersonate one while doing imaginative play with my son)- this is just our story and information that has been helpful or interesting to us. I hope it is helpful and interesting to you!


Showing posts with label Resources. Show all posts
Showing posts with label Resources. Show all posts

Sunday, November 25, 2018

Exploring New Ingredients for Cooking

These days many adults have grown up eating instant food such as canned soups, processed packaged foods such as rice mixes and seasoning packets, or if they have learned cooking "from scratch" it involves processed ingredients such as canned broth and pre-made dough.  It seems that not many people regularly cook from actual scratch and for many people this may be a very functional allocation of their time.  While this may (or may not) work well for some people it can make it difficult or expensive to try making dietary changes, as specialized processed foods may be prohibitively expensive, unpleasant to eat, or may be very hard or impossible to get.  Sometimes learning to make an ingredient from scratch (such as broth, mayonnaise, or salad dressing) is a good solution to this dilemma.  Another solution that can actually be quite fun is to learn to use ingredients that you have not worked with before and to learn to cook new types of dishes.  While this can be fun and exciting and very rewarding to do, it can take a lot of learning and adjustment as you get used to new ingredients and cooking methods.  Below is a collection of links that can help make this transition easier.  Or course what is new to one person is the comfort food that someone else grew up with, and will depend on where a person grew up, where their family and friends and neighbors are from, what restaurants and food stores they have had access to, their income, and many other factors.

Fruits and Vegetables:
Fruity Fruits (YouTuber Emmy learns about and eats unusual fruits)
How To Cut Pineapple Without Waste
Buddha's Hand (a type of citrus)
What is Jackfruit and how to eat it
ASIAN VEGETABLES: BEANS, MELONS, MUSHROOMS, AND ROOT VEGETABLES

Grains, Flours, and Their Replacements:
The Many Possibilities of Potato Starch


Thursday, June 14, 2018

Organizing, Managing, and Traveling with Medical Supplies

Some of the people who live with the constellation of symptoms and diagnoses that I discuss on this blog are so sick that we require an intensive level of medical intervention that necessitates using, storing, and transporting large amounts of medical supplies.  This can include supplies needed for tube feeding and TPN (IV feeding), central line care, infusions of medicine such as IVIG therapy, oxygen therapy, braces for joint support, and more.  The sheer amount of supplies can quickly become overwhelming but for these supplies to help we need to know what we have so we can avoid running out and also be able to find what we need quickly.  Below are ideas and videos by people with a variety of medical needs showing the systems and tricks that they have found work for them.

Storing and organizing supplies:
Room Tour (from Cheyanne Perry’s blog Hospital Princess)
How I Store all of my Medical Supplies (Feeding Tube, Central line, Medication etc)

Transporting and traveling with medical supplies:

New Feeding Tube and  IV Therapy Tools! | Travel Supplies & Backpacks (from Chronically Jaquie)
Traveling with IV Nutrition or Tube Feeding Webinar
PACKING MEDICAL SUPPLIES FOR AN AIRPLANE TRIP (from The Frey Life channel)
My Chronic Illness Travel Essentials

Traveling with TPN 
Nutrishare is able to ship to all 50 states


Monday, April 16, 2018

Health and Holidays

Holidays can be a challenging time for many people, but for people dealing with chronic health problems- especially ones that involve food and eating- they can be especially difficult.  Below are some resources that can help us to cope with these challenges.

Basic information and suggestions from the American Academy of Allergy Asthma and Immunology
Traveling on a Special Diet by Julie Matthews
Talk About the Holidays from TACA
Avoiding Holiday Havoc: Healthy solutions to avoid meltdowns and keep the holidays happy
Phenols and Christmas trees
Some tips for Thanksgiving from TACA

The Oley Foundation (support for people on feeding tubes and IV nutrition) has a page with a lot of resources Coping Strategies for IV and Tube Feeding that includes:
Holiday hints
from The Oley Foundation
Reducing holiday stress from The Oley Foundation
Coping with the holidays from The Oley Foundation
Holiday hurdles from The Oley Foundation

HALLOWEEN
Natural Candy Store has a wide selection of candy that is suitable for people with various allergies or who follow special diets.
Healthy Halloween: Trick or Treat Reinvented (from Julie Matthews' Site)
Halloween and trick or treating
(geared towards autism but widely applicable)
GFCF candy that is widely available

Sunday, March 25, 2018

Resources and Information About Giftedness in Students and Adults

This is a list of links to resources and other things of interest to families with gifted individuals.  Many people with disabilities are also gifted, for which the term is 2E for "twice exceptional".  Finding appropriate educational placements is often already difficult for a child with Autism or any number of other "learning disabilities" but when you add in giftedness it can become almost impossible to find placements that are appropriate and work well.  Families often find that they need to be creative in putting together the pieces of their child's educational plan.

GENERAL:
Gifted Development Center (GDC) "Since 1979, the Gifted Development Center (GDC) has served as a global leader in the assessment and development of gifted individuals of all ages. We support giftedness throughout the lifespan. Through our work, we have changed the lives of over 6,000 children and their families worldwide. We also build awareness and understanding of giftedness, through research, advocacy and development of national policy.

Our philosophy is child-centered: we put your child first. We focus on understanding your child’s inner world (overexcitabilities, emotions, perceptions, relationships, personality, etc.), rather than on his or her potential for success. We see giftedness as a pervasive way of being in the world, not as being "gifted in...."

We provide assessment, advocacy, counseling, books, articles, Advanced Development Journal, and a Speakers Bureau to educate the public about the needs of gifted children and adults."



EVALUATION and EDUCATIONAL RESOURCES:
Hoagies’ Gifted Education Page
Gifted and Talented .com (Stanford program)
Gifted Homeschoolers Forum
WHAT IS GIFTEDNESS, AND WHAT ARE GIFTED PEOPLE LIKE?
What is Giftedness? (from the website of GDC)
The Sad Tale of William James Sidis - The Smartest Man Who Ever Lived 

Friday, March 23, 2018

Techniques, Tips, and Tricks for Making Fun Sweet Treats (Cakes, Candy, etc.)

I love to cook and bake and enjoy the challenge of adapting recipes and techniques into ones that work for various special diets and eating preferences.  Most of these recipes and techniques use ingredients such as artificial colors and corn syrup that many people avoid eating as well as common allergens such as dairy, gluten, and corn.  Below are links to videos and resources that demonstrate techniques, methods, and ideas that I'd like to use in adapting recipes.  They are NOT included for the recipes themselves.  I hope you have as much fun as I do playing with your food!

General:
How to Cook That (fancy cakes, chocolate, and desert)
The First Year blog has so many fun ideas for decorating desserts
My Cake School Blog Cake Recipes and Free Cake Tutorials

Candy:
More cookie art
How to make 3D cookie tea cups
Gluten-free milk and cookie shots
S'mores blossom cookies
Cookie ice cream cones
Strawberry Cookies (Sound cookies)- these amazing cookies have a clear compartment with smaller cookies inside like a rattle

Cake:
How to make a cake (teaches the basics of cake making from start to finish, very detailed)
How to make a basic ice cream cake
How to bake a heart inside of a cupcake
Inside-out rainbow cake
Making a geode cake
How to make geode cake pops
Snow globe Christmas cupcakes
Cakecrumbs (blog with instructions for many different amazing cakes)
Spherical planetary cakes with scientifically accurate layers
Rubik's cube cake
Red velvet brain cake for Halloween
Long snake cake (from Harry Potter?)

How to Make Frosting:
Chocolate Ganache Recipe - 3 Ways! (Whipped, Poured and Spread Frosting)
(melt with double boiler instead of microwave)
The Science Behind Chocolate Ganache
9 Essential Frosting Recipes

How to Decorate with Frosting:
LEGO brownies
How to Fill and Frost a Perfect Cake Like a Pro
Learn How to Fill a Pastry Bag and Pipe
(Apple roses, ombre frosting, drippy edge)

Marshmallows:




Sunday, March 11, 2018

Supplement Notes (Minerals)

What are minerals?  From The Linus Pauling Institute Micronutrient Information Center:
"Minerals are elements that originate in the Earth and cannot be made by living organisms. Plants obtain minerals from the soil, and most of the minerals in our diets come directly from plants or indirectly from animal sources. Minerals may also be present in the water we drink, but this varies with geographic locale. Minerals from plant sources may also vary from place to place, because soil mineral content varies geographically."

Calcium - necessary for maintaining healthy bones and teeth.  Also an important signaling molecule regulating cell responses to signals from other cells or in the blood, such as the constriction of muscle tissue, the firing of neurons, and the release of insulin.  Calcium is also important for controlling the dilation and constriction of blood vessels.  Calcium levels are carefully regulated in the body because too much or too little can both cause serious problems, including cardiac arrhythmias and palpitations. 

Copper - is an important anti-oxidant and a necessary component in many enzymes.  It is important for energy production (mitochondrial function), iron metabolism, immune function, connective tissue formation and maintenance (including bone), neurological function, and cardiovascular function.  Copper and zinc compete for absorption and should be taken in a ratio of 15:1 zinc to copper. 

Iodine - is antimicrobial, with action against viruses, bacteria, fungi, and parasites.  Also protects against cancer and supports thyroid function.  Necessary for proper bone and brain development in infants.  Deficiency can be caused or worsened by eating a lot of baked goods such as bread that can be high in bromide (bromide can displace iodine). 
Is Potassium Iodide a "Magic Bullet" for Radiation Exposure?

Iron - necessary for the production of heme, which is itself necessary for the production of hemoglobin to carry oxygen in the blood and for the cytochrome enzymes, which are central to the liver's ability to detoxify the blood.  Also important for DNA synthesis and energy production.  Iron levels in the body are careful controlled because both a deficiency and an excess can be very harmful. 

Lithium - low dose protects against glutamate toxicity.

Magnesium - is important for a large amount of processes in the body, including maintaining healthy blood pressure and cardiac function, metabolism, DNA synthesis, proper movement of the GI tract so that contents keep moving through at the right pace (excess magnesium causes diarrhea), calmness and other neurological functions, it helps to regulate levels of other minerals including calcium and potassium, it is a structural component of bones and muscles, 

Thiamine and magnesium deficiencies: keys to disease

Manganese -  is an essential element needed for healthy bones, wound-healing, and the metabolism of proteins, cholesterol and carbohydrates. Manganese levels affect the levels of iron, magnesium and calcium in the body.  Manganese is an essential part of the primary anti-oxidant in the mitochondria.  It is also necessary for detoxifying ammonia that builds up during amino acid metabolism via the urea cycle.  In the brain a manganese-containing enzyme converts glutamate, which is an excitatory neurotransmitter and toxic in elevated levels, into glutamine.  It is also important in the formation of bone and cartilage and wound healing.

Molybdenum - important cofactor for the enzyme sulfite oxidase that breaks down sulfites.  If the enzyme is not functioning adequately, sulfite levels go up, which can cause headaches, irritability, nose bleeds, and allergies. 

Potassium - potassium levels in the blood are carefully regulated because it is so important for so many body functions, including maintaining healthy blood pressure and cardiovascular health.  Deficiency of potassium can result in paralysis, dangerous heart arrhythmia, partly because it is an important electrolyte (is in ionic form in the blood and can conduct electricity.  The movement of potassium ions into and out of the cell is part of the process of regulating cell responses such as the firing of neurons and heart cells.  It is also important for carbohydrate metabolism.   

Selenium - is an anti-oxidant, is an important component of many enzymes, especially in the intestines and lungs.

Silica - High levels are found in the aorta, trachea, bones, and skin.  As people age their soft tissues can lose elasticity.  Silica helps by stimulating collagen type 1 which helps loose skin and stimulates fibroblasts to make new skin.  It also improves bone mineralization and density, it increases calcification of bone similar to vitamin D.  Vitamin K2 is an important cofactor for silica.  Silica also decreases blood pressure by increasing elasticity of arteries, chelates aluminum, helps hair and nails. Best form is Orthosilicic Acid.  Silica can be found in grains, polished rice, beer, mineral water, and veggies. 

Vanadium - may help control blood sugar, may be important for bone growth.

Zinc - supports healthy immune function, fighting viruses in particular, and low-grade infections can deplete the body of zinc. Zinc is also important for vision, growth and development in children, neuron-transmission, and reproduction.  Zinc helps keep testosterone at normal levels and is necessary for producing adequate stomach acid.  Phytates are anti-nutrients in some foods and block the absorption of zinc in the intestines.  Zinc is mostly found in animal foods such as shellfish (especially oysters) and meat.  Good plant sources include pumpkin seeds and brazil nuts.  Zinc and copper compete for absorption so excess copper exposure can lead to a zinc deficiency.  Some of the symptoms of elevated copper levels include anxiety, depression, and elevated cortisol levels that can put your body into fight/flight mode.  Zinc lowers cortisol and contributes to the production of GABA which is the brain's primary inhibitory neurotransmitter, thus reducing stress levels.  

The blood disorder Pyrroluria causes significant zinc deficiency and requires regular supplementation that can be quite high. A deficiency of zinc can cause loss of taste and smell.  Other signs of a zinc deficiency can include low testosterone levels and hypogonadism (shrinking testicles), and upper respiratory infections such as pneumonia.  Diabetes can be a factor because high blood sugar will deplete zinc, as can high stress levels and high cortisol.